Navigating GBM: My Journey Through Loneliness and Coping

As someone who's been grappling with a diagnosis of GBM for just four months now, I can tell you firsthand that it's been an emotional rollercoaster. It's been a whirlwind of feelings from highs to lows, tears to introspection. One thing they don't prepare you for is how isolating this disease can be. The loneliness creeps in, and it's hard to shake off.

Part of what makes it so lonely is the constant fear of what might come next. Every little sensation in your body becomes a harbinger of doom, making you wonder if the end is near or if the tumor is making a comeback. It's a heavy burden to carry.

While I am no expert, as I myself am newly diagnosed (four months), I've stumbled upon a few things that have helped me cope. First off, writing has been my saving grace. Starting this blog has given me a sense of purpose. It's a platform where I can pour out my thoughts, vent, or express myself freely. I write about whatever I want, and if one or a hundred people read it, it makes no difference because this is my soundboard, and I hope someone can gain something from it, but if not, it helped me.

Secondly, support groups have been a godsend. Connecting with others who understand what I'm going through, whether online or in person, has been incredibly comforting. Find people who are going through the same thing you are experiencing. This helps both from a support perspective and also from a medical perspective. People are different and have tried different things; this information really helps.

Lastly, nothing beats the love and support of family. They've been my rock through it all, providing a shoulder to lean on and a listening ear whenever needed. I was blessed enough to have a fantastic husband and an amazing family, both immediate and in-laws. But even if you don't have this support, find your tribe and return to my previous recommendation of support groups.

In summary, while dealing with GBM can feel incredibly lonely and overwhelming, finding outlets like writing, seeking support from others, and leaning on loved ones can make all the difference in navigating this journey. Remember, Warriors, you are not alone!