Navigating Work and Life While Wearing Optune!

My perspective on working while using an Optune Device: For those unfamiliar with it, Optune is a wearable, FDA-approved device that gives continuous therapy to the area of your brain affected by a GBM tumor (Brain Tumor/Brain Cancer). It works through four adhesive patches called transducer arrays.

Dealing with a diagnosis like brain cancer is really tough, especially with all the treatments and physical changes like shaving your head. Getting used to wearing Optune for eighteen hours a day, seven days a week, for eighteen months can be pretty overwhelming. At first, I didn't want to do it and felt self-conscious and vulnerable. I didn't even want to go to work, scared that people would point and stare. Being in a management position, showing any sign of weakness, was especially hard.

Over time, I learned to adapt to this new reality. I found ways to incorporate Optune into my life, enabling me to work without obstacles. While my approach may not work for everyone, I found comfort in treating Optune as an accessory rather than a burden. I even found a nice Coach Bag that fits when I feel fancy; the more you treat it like an accessory rather than a medical necessity, the easier it gets.

Here are five tips that helped me on this journey (I have linked what has worked for me):

1. Find a suitable purse/bag hook: Keep Optune within reach at your desk with a reliable hook. This simple solution ensures accessibility while you work. LINK
   

2. Invest in breathable hats: Optune can produce warmth, particularly for men who tend to feel warmer. Choose breathable hats to reduce discomfort. LINK
   

3. Utilize tape: Secure Optune in place with breathable tape to prevent sweat buildup and ensure adhesion. You do not want your alarms to go off.

4. Keep cool with fans: Combat the heat with strategically placed fans. A fan at your desk or next to your bed can significantly improve your comfort during long work hours. LINK

5. Remember, others care less than you think: Feeling self-conscious is totally normal, but most people aren't staring or feeling sorry for you. Talking openly about it can clear up any misunderstandings and get you support from your colleagues and friends.

Remember, you're not alone in this journey. Reach out, share your experiences, and find strength in the community. Sometimes, we don't give people the credit they deserve; remember, everyone is human. Together, we can navigate the challenges and emerge stronger. If you're seeking further support and insight, feel free to explore my blog for more resources and encouragement. You've got this.